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Tummy Issues
My daughter Kayla was born with a rare disorder called Hirschsprungs disease. She had the deadliest form of it, and received her first colostomy at 3 weeks old and her permanent one at 4 years old. It has been a very long road, she has been through many surgeries, home health care and lived on TPN plus many many trips and stays in the hospital mostly ICU. Kayla and I have created a support group called "Tummy Issues" so that we can meet and support others whom suffer tummy issues, special needs, and or rare disorders. Kayla is 12 years old today and quite a princess. I'll be posting about how life is for a child living with a colostomy and all the daily issues and other areas like socially, physically, mentally and spiritually she deals with. In the mean time Kayla loves playing games at Games Extravaganza if you love playing FREE games you just might see her there if not you can register for free and leave her a message.
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